It’s Mommy -standing in for your usual narrator Daddy- I know it had been a day or two since we posted. So first to catch you up to this morning. On Friday we asked them to take her off the gentamicin antibiotic that she had been receiving due to potential serious side effects to children with
It seems like I’ve been repeating myself with the past few posts…they’ve all been about slow improvement and ham. Would anyone care to guess what this post will be about? Again, a day of resting, antibiotics, and ham with some improvement. Adela is still on her antibiotics (although she’ll be coming off at least one
Not a lot of news from the past two days. Adela’s condition is still gradually improving. We’re seeing much more of her normal, happy mood during the day. She does get tired easily and hasn’t been out of bed much, but we are sitting up and eating some ham. The doctors are still investigating the
We’re not out of the woods yet, but Adela’s blood chemistry numbers are slowly improving. For example, her platelets have nearly doubled from yesterday (from ~60 yesterday to 110 today) and her INR has dropped (from ~2.5 yesterday to 1.5 today). Both of those deal with her blood’s ability to clot, among other things. So,
We got through the night without having to pack up and move to the PICU. The lab results are all either improving slowly or staying the same. The plan for the next few days is to just focus on nutrition (from TPN via her central line), antibiotics, and rest. We’ll post an update if anything
The doctor gave us the preliminary results from her CT scan last night around 1:30 AM. The results show that there are no abscesses, which is great. One less thing to worry about and one less possible cause of infection. However, the results of some of her bloodwork are causing the doctors concern. Her hemoglobin
Long day, late night, and, as such, a short post. We don’t know much more from the scope than what I already posted earlier. Adela slept most of the afternoon, especially since they gave her a very low dose of Oxycontin to help with the pain from the scope procedure and the central line surgery.
Adela is recovering from her scope procedure this morning. Right now, she’s sleeping in the room with Mommy. Based on what they found, the plan has changed a bit. Adela had, in the words of the GI doctor, “just horrible colitis” (inflamed colon) with some painful ulcers. It’s not necessarily Crohn’s disease, however it’s close.