Moving Day
A lot happening today…
Adela did well with the increased formula rates overnight, so the doctors and we are in agreement that she’s ready to move out of the PICU and into a regular room. We’re quite excited since this is a big step toward going home. We know we’ll still be here for a week or so, but at least we’ll have moved away from the PICU (and all the emotional implications of being in an ICU room). Even though we’re happy to be moving, part of us is nervous as well. It’s been great having such attentive nurses literally ten steps away at all times and to have that high nurse-to-patient ratio. However, hopefully we won’t need the nurses nearly as much up on the floor, so it should balance out.
In addtion to our moving today, Adela is going off her remaining antibiotics and the TPN (total parenteral nutrition). That, combined with changing her remaining medicines to be given through her feeding tube, means that we will no longer need the main IV line in her neck. The timing is good because as she’s been waking up more, she’s been scratching at the tape that covers the line and is making it leak just a little bit. They’ll need to put in a regular IV line (probably in her foot) just in case they need to administer any medicines, but hopefully that shouldn’t be a problem.
Her labwork shows that her liver is still slowly improving and the doctors felt that she’s making such good improvement with her lungs that they didn’t order an x-ray for this morning.
So, all around, good news. Hopefully our next blog post will be from the (relative) comfort of a little bit larger room upstairs. Then Ali and I can actually sleep in the room with her rather than in the PICU waiting room!
Great to hear that things continue to look up….
Hi! You may not remember me. I used to work with your dad at the garage. I met you there a couple of times and I always heard great things about you over the years that I worked with your dad. Your entire family is in my prayers during this difficult time. I know all will be well very soon with your baby girl!
Jill Salerno
Another big step forward. It gives us all true pleasure to know that Adela is improving so greatly…I send a great grandmother’s love…
Another day of wonderful news. Way to go Adela!!!!!! Love A. Dottie and U. Ron
This is such good news! We have all been thinking about you all and checking the blog every day. Looking forward to seeing you at home soon! XOXO
Adela is an amazing little girl, It is so wonderful to hear that she is getting stronger and healthier each day! Love Jeanne
All of this news brings tears of happiness to my eyes. Our prayers for Adela are being answered! In the future, we will look back to 2009 and remember a very emotional time – Adela’s battle and victory, Wyatt’s surprise arrival and beautiful poop, and the end of my mother’s pain. Much love, A. Judy
So glad to read that Adela is improving and might go to a regular room very soon. Much progress has been made. We are continuing to hold you three on our prayer list and sending good wishes for the transition out of the PICU to go smoothly. Looking forward to visiting again soon. Blessings, Claudia Frost
Hey! This is the best news I’ve heard all day! I’m so happy that Adela is getting better and will be moved to a regular room. It won’t be long now and you will be able to take your family home. What a wonderful day that will be!
Love,
Amanda
I’m so happy everyone gets to go to a room away from the PICU, I can’t wait to be back in NC where I get to see all 3 of you together!
Sorry I was out of town this weekend, but you not far away in my thoughts.
Karen