Button, button, who’s got a button?

Well, I figure I’ve procrastinated long enough to weed out anyone not really dedicated. 🙂

Adela has been doing well.  No real setbacks.  She had been having a lot of reflux flare up, but we finally think we tracked down the problem.  Sometimes her prevacid meds will lose their potency if they get humid.  When we started the new batch two days ago her reflux seemed to die down.  She still has a little during the feeding but nothing compared to before.  Thank goodness, because it was about to drive us all bananas.

She is still working on her walking…she is slowly gaining her strength back in her legs.  She likes pushing her wagons and walking around her play table.  She likes to make her wobbly sound, first developed for Boo and Baa, when she is walking .  Her mood has improved now that the reflux is better – it is amazing how much more sunny she is after all this.

We were wondering how much she remembered about the hospital.  Yesterday she was helping me clean the toy area and found her bracelet from the hospital.  She proceeded to sign “her wrist” “sick” and “away from home”.  Apparently she does, however she didn’t seem upset by talking about it and moved right on with playing.

We have  been working with her on accepting the feedings and people touching her g-tube.  We have already developed our own slang and stories.  Her g-tube is Mr. Button and he likes to be talked to.  The pole and machine are his and he “eats” special button food as opposed to “mouth food”.  Also a big breakthrough came when she decided that medicines that have to go through the med-port are Mr. Button’s drinks.  She is doing really well and actually sometimes seems to like for Mr. Button to get attention.  Unfortunately her site is a little sore right now so that doesn’t go over really well.

Again I apologize for the delay in the update.  We just celebrated Steven’s 30th and I have been working on a bunch of projects around the house for him, including a new fern/hosta garden (very proud of my retaining wall).