I want some ham now…

In the midst of not feeling well, Adela still can make us laugh.  This morning she woke up a little before 8:00 AM and said, “I’m ready to get up for the day.  I want some ham now.”  And eat ham she has.  From morning till night, the only thing she’s eaten today is hospital ham.  In fact, we were trying to get her to bed a little while ago and she was almost asleep when her eyes popped open and she said, “I want to eat some ham now.”  Well, what were we to do — we sat her up and she ate ham for thirty minutes, laid back down and went to sleep.

Adela did not get another IV today.  They decided to actually wait until tomorrow during her scope when she’s sedated for that to put in an IV.  That’s fine with us…we didn’t really have a big preference either way.

Tomorrow will start early with her flexible sigmoidoscopy starting at 7:30 AM.  The “transport team” will come get her at 6:30 AM to go down to pre-op.  They’ll be able to sedate her (with the option of using heavier anesthetic if necessary) for the whole thing.  From start to finish (not counting pre- or post-op), it shouldn’t take more than half an hour.  The actual scope procedure is about 7 to 10 minutes, including the time to grab a few souvenirs (biopsy samples) while in the neighborhood.  We should have some preliminary results tomorrow afternoon from the procedure, however some of the tests from the biopsy samples most likely won’t be back until next week.

I talked to one of Adela’s pediatricians on the phone this afternoon and the other came by to visit us this evening (he works at the hospital).  The team here does a good job of keeping them up to date and sometimes it actually helps to get them to explain some things to us that the core team here may have glossed over.  Talking with her pediatrician here make us feel better because he was able to explain a few things to us that we hadn’t asked the core team.

She has some nutritional deficiencies based on her test results.  Not entirely surprising since she has been sick for three weeks.  However there are some deficiencies they said were more long-term that hadn’t started the past few weeks.  Well, that made us worried since we were pretty sure we were giving her a balanced diet.  So we asked for examples.  The main one for her is a selenium deficiency — it’s really low.  It turns out the main way most people get selenium is from bread.  Well…that’s not going to happen anytime soon because of her allergies.  So, she got a few vitamin supplements this evening.  After tomorrow’s scope procedure, the team is going to suggest bumping up her Elecare to get her back to a better nutritional state…they’re worried that her being run down nutritionally is masking some other problem.

We got a batch of letters today from Reelsboro United Methodist Church…thank you everyone.  We appreciate the thoughts, prayers, and letters.

Also, we forgot to announce a few days ago that Adela has a new cousin.  Mommy’s brother Carlo is a daddy times two now.  Welcome to the family Simone!