In the midst of not feeling well, Adela still can make us laugh.\u00a0 This morning she woke up a little before 8:00 AM and said, “I’m ready to get up for the day.\u00a0 I want some ham now.”\u00a0 And eat ham she has.\u00a0 From morning till night, the only thing she’s eaten today is hospital ham.\u00a0 In fact, we were trying to get her to bed a little while ago and she was almost asleep when her eyes popped open and she said, “I want to eat some ham now.”\u00a0 Well, what were we to do — we sat her up and she ate ham for thirty minutes, laid back down and went to sleep.<\/p>\n
Adela did not get another IV today.\u00a0 They decided to actually wait until tomorrow during her scope when she’s sedated for that to put in an IV.\u00a0 That’s fine with us…we didn’t really have a big preference either way.<\/p>\n
Tomorrow will start early with her flexible sigmoidoscopy starting at 7:30 AM.\u00a0 The “transport team” will come get her at 6:30 AM to go down to pre-op.\u00a0 They’ll be able to sedate her (with the option of using heavier anesthetic if necessary) for the whole thing.\u00a0 From start to finish (not counting pre- or post-op), it shouldn’t take more than half an hour.\u00a0 The actual scope procedure is about 7 to 10 minutes, including the time to grab a few souvenirs (biopsy samples) while in the neighborhood.\u00a0 We should have some preliminary results tomorrow afternoon from the procedure, however some of the tests from the biopsy samples most likely won’t be back until next week.<\/p>\n
I talked to one of Adela’s pediatricians on the phone this afternoon and the other came by to visit us this evening (he works at the hospital).\u00a0 The team here does a good job of keeping them up to date and sometimes it actually helps to get them to explain some things to us that the core team here may have glossed over.\u00a0 Talking with her pediatrician here make us feel better because he was able to explain a few things to us that we hadn’t asked the core team.<\/p>\n
She has some nutritional deficiencies based on her test results.\u00a0 Not entirely surprising since she has been sick for three weeks.\u00a0 However there are some deficiencies they said were more long-term that hadn’t started the past few weeks.\u00a0 Well, that made us worried since we were pretty sure we were giving her a balanced diet.\u00a0 So we asked for examples.\u00a0 The main one for her is a selenium deficiency — it’s really low.\u00a0 It turns out the main way most people get selenium is from bread.\u00a0 Well…that’s not going to happen anytime soon because of her allergies.\u00a0 So, she got a few vitamin supplements this evening.\u00a0 After tomorrow’s scope procedure, the team is going to suggest bumping up her Elecare to get her back to a better nutritional state…they’re worried that her being run down nutritionally is masking some other problem.<\/p>\n
We got a batch of letters today from Reelsboro United Methodist Church…thank you everyone.\u00a0 We appreciate the thoughts, prayers, and letters.<\/p>\n
Also, we forgot to announce a few days ago that Adela has a new cousin.\u00a0 Mommy’s brother Carlo is a daddy times two now.\u00a0 Welcome to the family Simone!<\/p>\n","protected":false},"excerpt":{"rendered":"
In the midst of not feeling well, Adela still can make us laugh.\u00a0 This morning she woke up a little before 8:00 AM and said, “I’m ready to get up for the day.\u00a0 I want some ham now.”\u00a0 And eat ham she has.\u00a0 From morning till night, the only thing she’s eaten today is hospital […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[13],"tags":[],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/pviUd-6X","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/posts\/431"}],"collection":[{"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=431"}],"version-history":[{"count":2,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/posts\/431\/revisions"}],"predecessor-version":[{"id":440,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/posts\/431\/revisions\/440"}],"wp:attachment":[{"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=431"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=431"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=431"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}