On Monday, Adela had her broviac catheter (a.k.a. “Brody”) removed.\u00a0 As we’ve mentioned before, we have mixed feelings about her no longer having the broviac.\u00a0 It was a safety net and a convenience — if she ever needed IV medicines quickly it was available, it made for painless blood draws, and it would be great to have for as long as she’ll be on the Remicade (which is indefinitely).\u00a0 However, a broviac is an infection risk and any fever over about 101\u00b0F lands us in the hospital on antibiotics for at least three days to ensure it’s not a major infection.\u00a0 So, we decided it was time for Brody to go bye bye.<\/p>\n
We arrived about 7:30 AM, spent about an hour with admission paperwork and waiting room fun, then moved back to the pre-op area about 8:30 AM.\u00a0 After more paperwork and meeting all the doctors and anesthesiologists that would be working with Adela, she got a nice dose of Midazolam (Versed) to relax her before surgery around 9:00 AM.\u00a0 Within a few minutes, she was relaxed and went back to the operating room.\u00a0 We waited for about 30 minutes and the doctor came out to let us know that everything went well.\u00a0 Mommy sat with her in the post-op room (only one parent was allowed back at a time) for a little while then we asked to be moved to the pre-op area to observe her a little while longer.\u00a0 We’re hesitant anytime she gets anesthesia since it’s one of the factors that could have led to her stay in the PICU last year.\u00a0 By about 11:00 AM, it was clear that she was back to her normal self and spunky enough to leave.\u00a0 In fact, she was so energetic, she wanted to go to Bear Rock Cafe in University Mall (one of her favorite places to go out to eat…even though she can’t have anything from the menu).\u00a0 After lunch, we walked around the mall and listened to a group of school children sing Christmas carols on a little stage that had been setup in the middle of the walkway.\u00a0 Adela was so excited about it that, after they were done and everyone had left, she got up on stage and sang “Twinkle Twinkle Little Star” and showed off her own dance moves.\u00a0 So much for the nurse’s warning that “she might be tired and woozy for a day from the anesthesia”.<\/p>\n
Tuesday, she had a follow-up appointment with her GI doctor to discuss her Crohn’s.\u00a0 The results from the tests all suggest that she’s doing well on the Remicade.\u00a0 She’s still on steroids, but that dose is being weaned down a bit each week.<\/p>\n
So, overall, good progress.\u00a0 We’re pleased with the new medicine and we can see a major improvement in her energy level and mood.<\/p>\n","protected":false},"excerpt":{"rendered":"
On Monday, Adela had her broviac catheter (a.k.a. “Brody”) removed.\u00a0 As we’ve mentioned before, we have mixed feelings about her no longer having the broviac.\u00a0 It was a safety net and a convenience — if she ever needed IV medicines quickly it was available, it made for painless blood draws, and it would be great […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","enabled":false},"version":2}},"categories":[1],"tags":[],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_shortlink":"https:\/\/wp.me\/pviUd-aa","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/posts\/630"}],"collection":[{"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=630"}],"version-history":[{"count":1,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/posts\/630\/revisions"}],"predecessor-version":[{"id":631,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=\/wp\/v2\/posts\/630\/revisions\/631"}],"wp:attachment":[{"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=630"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=630"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.raisingladybug.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=630"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}